The Seany Foundation
The Seany Foundation is a 501(c)(3) non-profit organization that was founded to carry on Sean Lewis Robins' legacy of battling Ewing's sarcoma (ES). The Seany Foundation's mission is to fund research to help find cures for pediatric cancers, especially sarcomas, and to improve the quality of life for children and teens battling cancer. We are working to ensure that research programs devoted to rare childhood cancers get the funding they desperately need.
Childhood cancer affects 1 in 330 children before they turn 20 years old. Cancer is the leading cause of death in children. It is a random killer with no known cause. Our goal at The Seany Foundation is to fund cutting-edge research for ES and other childhood cancers, and to help teens and children thrive and survive, as they struggle through their own cancer journeys.
Each year, the National Cancer Institute spends over $500 million on breast cancer research alone, yet only $20-30 million is set aside for the research of all childhood cancer. This amount steadily declines year after year. Furthermore, only a fraction of this funding is put toward finding cures for the many sarcomas and rarer childhood (pediatric) cancers that exist. Despite the need, the National Institute of Health (NIH) dedicates less than 3% of its research dollars to pediatric cancers.
Every day, 35 of our children and teens are diagnosed with cancer. Seven will die. Seventeen of the 28 survivors will suffer devastating life-long side effects.
Through an organized support effort, we can come together to help reconcile this harsh reality for the children, teens, and families who face these horrible diseases.